Research Study on the Childbirth Experience
Would you like the chance to talk about your experiences during birth? Autistic individuals are being sought for a study focusing on the childbirth experience. Autistic people who have given birth in an acute care setting such as a hospital and had no complications in themselves or with their baby are invited to participate.
To be considered for the study you must be able to read and speak English and be willing and able to answer questions in an interview.
This is a study has been approved for solicitation of participants by Institutional Review Board at Widener University. The researcher is a doctoral nursing student.
The study’s title is: The Experiences of Autistic Women During Childbirth in the Acute Care Setting.
You will be interviewed about your childbirth experience in a convenient place and time for you. You can also choose to be interviewed over the phone. The interview will last about 1 hour.
There is a slight risk of experiencing some anxiety during the interview and the potential loss of privacy during the interview. To decrease these risks, the researcher will interview you in a private location and keep all records of the interview private. You may also bring someone to the interview if you wish.
All participants will receive a $50.00 Amazon gift at the interview
Please consider participating. This is an opportunity to share your childbirth experiences to help nurses better understand these specific needs.
If interested, please contact:
Jane Donovan, MSN, RNC-MNN
Phone: 610-609-9967
Email: [email protected]
I am interested to find out if I qualify for the study and wish to participate.
Seshe, please contact the researcher, Jane Donovan – Phone: 610-609-9967 – Email: [email protected]
“had no complications in themselves or with their baby”
Do you mean had no complications while giving birth? Or had no high risk factors or complications during pregnancy?
Many autistic women will have experienced complications during labour due to the environment etc – exactly the thing you want to be studying. The wording of this could exclude them from participating.
Ocean, I submitted your question to the researcher….. will let you know what she says.
Hello, this is Jane Donovan I am the nurse studying the childbirth experiences. I would like to address some questions about the study that have appeared across AWN networking sites.
Here is a comment I would like to address:
“I do wish studies wouldn’t assume all people who have children are women, though… but I am glad someone is doing this, and I know things can’t be perfect.”
Thank you for your comments. I understand what you are saying and do not wish to offend anyone. Any person who has given birth to a child is invited to participate in this study.
Here is a question I would like to respond to.
“ask the researcher for a clarification… what are the limits of “uncomplicated,” and what is the reason for those restrictions?
Because…it’s a really good point someone made…a whole lot of autistic women are *not* going to have uncomplicated birth experiences, for reasons that may be directly related to being autistic, and it seems like it undermines the aim of the study to exclude those experiences”.
By complications I am meaning serious complications such as a mother having to go to the intensive care unit, or experiencing a life threatening condition. In the baby I am referring to serious complications such as preterm birth (less than 36 weeks), congenital health issues, fetal death or needing to go to the neonatal intensive care unit.
My rationale for not including these serious complications is that they may affect a woman’s perception of the birth experience. Describing the birth experiences of with complicated deliveries is important though, future research should be focused in this area.
Thank you for your questions and comments,
Jane
I’m really interested in this, though I like in the UK. Do the interviews must be face to face?