Tell Me About Your Autism Awareness Month

So, you got all excited about the Autism Awareness campaigns because you have an Autistic child – pardon me, child “with autism”, or a friend’s child “has autism”, or a friend of a friend knows someone “with autism”, or because all those celebrities said they would spend the month of April being “aware” of autism.

Aren’t celebrities so wonderful? A whole month aware of all those poor struggling families!

Amy Sequenzia quote
(Image Description) text reads: Let’s give the nice people who are not puzzle-pieces, who are complete human beings, another 10 years. Awareness works, right? It’s been “only” 10 years since they told us to be aware of autism to make everything better. -Amy Sequenzia awnnetwork.org The background is royal blue at the top it appears as if a spotlight is shining down on the text.

You bought the blue lights; maybe you walked in circles with all those teams, mostly full of children “with the autism”. Some of the kids seemed so difficult though! All the temper tantrums, maybe they were the “low-functioning” ones. You wonder why they were not having fun, that awesome loud music, the happy crowd bumping on them, and all that food smelled so good! Poor parents, they have to deal with this every day! You call them heroes. They ARE heroes! You might be one HERO! Is your child like Rainman?

You donated money too. That big organization full of celebrities says that we need more money to find a way to make the lives of “autism families” easier, the families need supports.

Maybe a little voice in your head whispered: this money will not be used to help the families. I think it never really helped mine. And why isn’t the help being directed at Autistic people?

But the voice did not use person-first language, and all those people without autism are saying that the money will help the families, then you got distracted by that “high-functioning” kid “with autism” who is so bright! Maybe he is like Temple Grandin! Do you wish your child were like Temple Grandin too?

You feel good now, and will feel even better when May comes. All the April “awareness” will certainly help those poor families. They will live again. And all the blue lights surely had an impact in the lives of children “with autism”, especially the boys. Blue is for boys after all. The lights are not pink because there aren’t so many girls “with autism”.

What are you saying? Nothing changed for the families, or the children?

What I described is not happening? The supports should have come after you bought all the blue lights! Light It Up Blue all over the world, all the monuments, and the supports did not materialize? But you walk in circles!

But all the awareness! It helps so much!

Now, the schools are more inclusive, right? Being aware of people “with autism”, it is probably easier for the schools to educate them now.

I am sure bullying and abuse also ended. People are “aware” of how difficult to understand, how unsocial people “with autism” are. And how they scream and flappy all the time? It is not like we are asking teachers and peers to “accept” all that weirdness. So, I am sure it is better now and your child will received the best education now that the school districts have been properly awared.

And the adults “with autism” are also finding jobs, aren’t they? No?

Not even the ones who look so normal?

But the awareness! Isn’t it what it was supposed to do? Everybody is aware, everything gets better!

I will just whisper this one, it is a delicate matter and I don’t want the “acceptance” people to listen. They will say that acceptance would make it harder for the media to excuse some parents. I am talking about parents who murder their children “with autism”. Awareness will end this, right? And if a parent ever does it again, the media will not say it was the fault of the victim. After all, everyone is so aware of autism now, people “with autism” are so close to be full people! Yes, they are still problematic, I am “aware” of that but sympathize with the murderer is gross! Is it?

How about that big group, with all the experts, parents and grandparents, not to mention the celebrities? They said that awareness is so important! And they know everything; they don’t even let the words of those “high-functioning” adults “with autism” get in the way of the money grab— sorry, fundraiser.

Of course, the “low-functioning” are the ones who really need to be taken care of, I mean, their families need some free time from them. Their voices could be heard, just a little, but they can’t speak, let alone think like real humans, so there is nothing to listen there.

Adults “with autism” don’t have REAL autism. That’s what the great people from the big organizations say. They know because their brains are NORMAL, not broken like brains of people “with the autism”. Except Temple Grandin. Her brain is almost fixed. She is just a little weird.

I know. Let’s give the nice people who are not puzzle-pieces, who are complete human beings, another 10 years.

Awareness works, right? It’s been “only” 10 years since they told us to be aware of autism to make everything better.

Anyway, April is almost over. Then nobody needs to think about this autism thing for another year. Only the big organization with the puzzle piece for the boys (it is blue, remember? Boy = blue). They will keep doing their thing and of course, they need to pay the six-figure salaries of all those nice executives who are so sorry for the “autism families”. They also need to pay the lobbyists who buy– oops, talks to, politicians.

Awareness works, right?

Right?

Right?!?!?!?!?!


"We Cannot Stop" by Amy SequenziaAbout the Author, Amy Sequenzia

12 thoughts on “Tell Me About Your Autism Awareness Month”

  1. Patricia Maria O'Connor

    I am one of the adults ‘with the Autism’ (yes, it IS real) and I wholeheartedly concur with everything in this article.

  2. Who ever said awareness would solve everything?
    This is inflammatory journalism at its finest.
    The oversimplification is insulting.
    Talking a pot shot at people who fundamentally agree on with you on a social issue doesn’t really make much sense, but probably gets your share numbers up.

    Awareness is an aspect of a campaign that seeks to solve a large and complex problem. Of course it isn’t the end goal, it is a small step on a long road. Why shit on people who are making the journey?

  3. I strongly dislike that organization, but I still wear blue on April 2 and welcome any and all opportunities to educate others. I’m growing weary of the people complaining about April…my question to them is, so what are you doing to change it? What are your suggestions? Just throw our hands up and say “oh well, we tried.” ? I don’t just wear blue, I regularly call, write and visit my legislators in person to try to make things better for our kids. And I try to encourage others to do the same.

    1. If you don’t know al the things that Actually Autistic Activists are doing, it is because you are not looking in the right place, meaning you are not listening to us.
      One reason for this is probably because Autism Speaks hijacked the month and the donation money, while silencing us. A$ owns media outlets.

      You light it up blue and the money you pay for the blue bulb goes to A$

      Autistics are donating iPads, writing legislation that actually helps Autistics, educating through libraries, blogs, conferences and books.

      A$ uses the money to pay executives and for propaganda. Plus trips to the vatican to call us “lepers”

    2. a lot of us have been active on Twitter trying to make a difference by reaching out to company’s , politicians , celebratys and everyday people to spread the word about how negitive AS is there have even been protests as some of there walk. This year there has been a whole counter movement to LIUB called walkinred that was asking people to ware red instead and educated people on why AS was so bad to support.

  4. Wish I could have added 2 sites, not just on. My other site is idontneedacure.blogspot.ca

    I feel I need to speak as a patent of autistic adults, allistic myself.

    I feel I need to give a parents view.

    My view??

    Spot on Amy!!

    As a parent of adult autistic children I started down this road pre-internet. So I had to research. Not “share”. And I think that made a difference in how I see things.
    Parents starting the autism household journey now go to google, Facebook, Twitter, etc. Any search of “autism” will bring up pages upon pages of A$ detriol first and foremost. You have to wade through quite a lot to find differing points of view. Even Eve myself, who has been on the forefront of autism fights for 2 decades, fell prey to A$ because they were EVERYWHERE at a time when you feel alone.
    But just as we, as people, never stop learning, nor should we stop investigating.
    Questioning.
    It was in doing such that I learned to hate A$ and everything they stand for.
    It is understandable to reach out and seek resources for your child wherever you can. It is even understandable to accept resources from an organization you do not approve of because those resources help your child.
    As a parent, everything you do is for your child, even if it means accepting resources from those you disrespect ( yes I’ve done it. I’d die for my kids, so swallowing my pride is minor), BUT as a parent to SUPPORT an organization that wants to eradicate the world of people Luke your child, no not like your child, YOUR CHILD, after being made aware if their mandates and policies is ananthema to me.

    Amy, love this post.

    Love the satire, love the sentiment.

    KUDOS!

  5. I’m an Autistic adult, and I think this piece is fantastic!! I agree with every single word you’ve written here, and I think you’ve done a fantastic job describing the pervasive ableism against Autistics as well as calling out A$ and their followers. Keep up the amazing work!

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