Stigma

First, I want to say this: I am against gun ownership. I don’t understand the appeal and I think guns should be regulated.

Autism Women's Network Stigma by Amy Sequenzia
Text reads: People who have mental illness are much less likely to commit violence against others, and are much more likely to be victims of violence. Less than 5% of gun related crimes are committed by people who have a mental illness. (Image description): The background is an outline of an overturned pill bottle with multiple pills of various shapes and colors spilled out with the top laying off to the right side. awnnetwork.org

I am also realistic and know that most people who own guns don’t want to go out and shoot other human beings.

I am very skeptical that the U.S. can ever regulate guns. This is verboten conversation, untouchable subject.

I am afraid I will be disappointed until I die.

But this post is not a crusade against guns (it might seem it is because I want to show how most people “feel” they are right but don’t have all the facts). This post is about the stigma people who have mental illness face every day, and how every time we see or hear about a mass shooting the conversation surrounding the events make the stigma even worse.

To say what I really want to say, I have to make some points. These are based on actual research, so they are facts, not feelings.

In the first 274 days of 2015, we have seen 294 mass shootings.

Since January 2013 (since the Sandy Hook Elementary School shooting) we’ve seen 142 school shootings – an average of 1 every week

We don’t hear about all of them. I believe the media prefers to report when there is mass casualty, or when the shootings happen in middle class/upper middle class areas.

There were almost 40,000 cases of gun violence this year, with about 10,000 deaths.

Most of what I see when one of these events is reported is that the shooters MUST have a mental illness.

More statistics, more facts:

People who have mental illness are much less likely to commit violence against others, and are much more likely to be victims of violence.

Less than 5% of gun related crimes are committed by people who have a mental illness.

Another fact:

The mental health system in the U.S. is a failure.

When States cut funding for social programs, mental health is one of the most affected – even if it is already underfunded.

There is a wrong assumption, often propagated by the media, that anyone who “really” wants care can get it.

This is privilege. Most people cannot afford to pay for care and have to rely on public health care programs. Many areas don’t have a place where people can go and ask for help. There is already too much stigma and poor people without family or community support face bias and threats like losing custody of their children, losing their jobs, being homeless. – even when they are not a danger to others.

I did some research about a few countries where gun ownership is illegal, or the process to buy one is long and difficult. Gun violence in these countries is much lower than in the U.S.

I talked to friends who live in these countries because I wanted to learn about their mental health programs. Some of these friends had to navigate the system for themselves or for family members/friends.

What I found out is that in each of the countries (Canada, countries in the UK and Australia) there are no mass shootings, or nothing like what we see in the U.S., and that the mental health system is far from good. People who have money can afford care. Most people cannot afford it. The waiting period is sometimes over a year, crises interventions are rarely available, and they are also underfunded.

The proportion of people with mental illness in these countries is about the same as here, only a small percentage of patients receive services and most people don’t have access to any service, not even during crisis (sometimes they don’t seek help because stigma is universal)

But these countries don’t see a spike in gun violence and/or mass shootings.

The only big difference between us and the other three countries is the easy access to guns.

Some people told me that we need to make sure people who have a mental illness should not own a gun, ever. Even if we forget the statistics about gun violence and mental illness, are we going to force-screen everyone?

I was also told that we need to forbid guns only to the “mentally ill who like to blow up people”. People who blow up other people, and mass murderers, are terrorists. They don’t do this because they have a mental illness, which is part of a person’s neurology. They do this because they are haters.

Even if we are only talking about the psychopaths (as someone said to me): I don’t know much about it. What I think I know is that they don’t feel empathy or remorse, they are manipulative, narcissistic and believe that they are better than everyone else. If we, again, forget the facts and the statistics about mental health and violence, it is silly to believe that psychopaths, so self-righteous, would ever think they need help.

Some evil people might have a mental illness.

Some people who have a mental illness might be evil. They are, after all, people. People can be evil.

I am talking about mental illness but I also include developmental disabilities in the stigmatization. Autism is a developmental disability. Many, many of the recent shooters have been “media-diagnosed” as Autistic. They use code words like “loner”, “acting in a strange way”, “anti-social”. I had friends losing jobs because bosses were afraid of them after they believed in the “media diagnosis”.

Sometimes their families also “diagnose” them after the fact, maybe a self-coping mechanism to distance themselves from the evil, to avoid being blamed (fairly or not) for not seeing the signs, for having raised “monsters”. Or maybe it is because their lawyers tell them to do that.

The consequences on people’s lives are real. A close friend posted this on social media:

“I was told this morning that because I am autistic I lack empathy, have no compassion and therefore could be the next person who goes into a school or movie theater and shoots a bunch of people.”

Some adults are nicknaming some Autistic children with the names of mass shooters, making the world very unsafe for Autistic children.

When we first hear the news, we don’t know if the shooter has a mental illness or if the shooter is Autistic. Why does it take just a few seconds for people to diagnose them as mentally ill? Yes, it is human nature to try to distance ourselves from “them” but I wish we could remember the REAL PEOPLE who DO HAVE a mental illness, and the stigma they already experience.

For example:

The shooter in the Charleston church was part of the KKK, a terrorist group. No history of mental illness, as far as I could find.

The shooter of the Oregon school was said to be empathetic, kind to others (not a psychopath). He was also an IRA admirer. IRA was an openly terrorist organization. He did not have a diagnosis of mental illness (his mother is now saying he was Autistic, as we sadly came to expect in these cases)

Saying that MOST of the shooters are mentally ill is a FEELING, not a FACT.

Saying that it is the fault of the mental health system is only partly accurate, because it only makes sense for less than 5% of the gun violence in the country – unless you believe all the school shootings that happened every week this year, and all the mass shootings that happened every day were acts of people who have mental illness. This is not the case, not a fact.

What I hope can happen is the same thing we ask every time a parent of disabled children murders them, and the media, some parents and some organizations blame the lack of services, the “difficult” child, while “understanding” the murderer. Like Autistic activist Zoe Gross said:

“We should talk about supports that families need. We should talk about it when there are cuts. We should talk about it when lack of services makes it difficult for us to work, to go out in the community, to perform ADLs, etc. We should talk about supports and services until our faces turn blue – but NOT in connection to murders. When someone kills their disabled child/children and our response is “this shows that we need more services,” we as a community are taking people with disabilities hostage. The implicit threat is “give us more help or the kids die.” Saying that parents are forced to kill their children by lack of services also de-stigmatizes child murder and excuses the parents’ actions. The truth is that plenty of parents raise children with disabilities under all kinds of circumstances, without killing or abusing them. Service provision is so, so very important but we CANNOT use child killing as a launching platform for advocacy on this issue. It will do more harm than good.”

So, please, let’s talk about mental illness and the inadequacy of our mental health system. Let’s talk about it all the time. But let’s not say that every mass shooting is caused by people who have mental illness or by people who did not get the services they needed. The majority of people don’t get services and only less than 5% of all people who have a mental illness commit acts of gun violence.

Please, let’s wait to know who these shooters are. They don’t deserve to be talked about for days. They deserve to be tried, or forgotten into oblivion.

Please, let’s talk about mental illness and the people who have mental illness in a supportive, less stigmatizing way. Because the facts show that they are victimized twice: when they are actual victims, and when they are wrongly blamed for heinous acts.

Please, let’s ask for more supports and a better system but not just because mass shootings happen. Facts show that people with mental illness are not the majority of the perpetrators.

Please.

Links:

Mass shootings statistics http://shootingtracker.com/wiki/Mass_Shootings_in_2015

http://www.theguardian.com/us-news/ng-interactive/2015/oct/02/mass-shootings-america-gun-violence

Mental Health System in the UK http://www.telegraph.co.uk/news/health/11889245/Our-mental-health-services-are-one-of-the-great-scandals-of-our-time.html


 

"We Cannot Stop" by Amy SequenziaAbout the Author, Amy Sequenzia

 

12 thoughts on “Stigma”

  1. I agree Amy. People with mental illness need support and acceptance not restrictions. We need help in respectful way that does not take away our rights to access community. We don’t need stigma.

  2. Yes!!! This encompasses everything I have felt in the past weeks and years regarding violent acts and the media’s stigmatization of those with mental health issues and/or disabilities. With your permission, I would love to share this with an organization I work with who work to combat stigma and discrimination against those with disabilities including mental health disorders. Your post is filled with passion, addresses the topic with facts rather than relying entirely on emotion, and brings up so many important points. This blog post is brilliant and inspires me on many levels. Thank you for your activism and sharing your experiences.
    Love and Solidarity,
    Aspie & Proud
    -Devin

  3. I agree with the sentiment completely, but I do have a question 🙂
    You appear to use the term “mental illness” as referring to a _diagnosed_ condition?
    Is it not possible that people perpetrating these acts are suffering mental illnesses that simply have not yet been diagnosed?
    Have you studied those perpetrators that have survived their crimes to see if they have been diagnosed after the fact as having a mental illness? I believe that by far most sufferers of mental illnesses are never diagnosed, and those that are diagnosed generally go through a fairly obvious episode that leads to that diagnosis.
    I am a lifelong shooter, and while I agree it may not be a good idea to make firearms available to people with some mental illnesses, I don’t see how we can enact laws to govern this. We already know that people with bad intent do not bother going through the licencing system to legally acquire their firearms for obvious reasons, every interaction involved might be the one to trigger concern that exposes their plan, and illegal firearms are quicker and cheaper to get than going through the system. To prevent a firearm legally getting into the hands of a “mentally ill” person requires _somebody_ to make a determination about the mental health of a licence applicant who very likely has, as yet, never publicly caused concern to pop up on the mental illness radar. Do we implement mandatory psychological assessment of all firearms applicants, with mandatory follow-ups throughout their firearms ownership – despite knowing that the fact that they are going through the system very likely rules them out as problem firearms owners? Of course, such an expense further disadvantages poorer people and forces people to at least consider avoiding the system and opting for illegal options instead of following the rules.
    The vast majority of civilian-owned firearms have never, and will never cause anybody any harm or concern so it is wrong to spend billions of dollars and millions of man hours trying to fix a problem that isn’t one. Put all that effort into addressing the problems of poor self-esteem, sense of entitlement, bullying, etc that lead people to believe violence will fix their problems and then we can really make a difference.

  4. I have a physical disability and a son with autism. Whatever impressions I had, disappeared twenty years ago. I guess then I was born. I am 54, very educated or over educated, if you are a victim of my wisdom. I am astounded by the ignorance of human beings, I continue to impress upon my son that education is the
    answer to freedom. After the Oregon shooting I cried, I got angry and I started writing my thoughts down. I continue to feel that the greatest obstacles are the
    psychological ones. I still believe that our minds serve us better than any other solution to a complicated problem.
    I do not write well, but find your avenue to expression! Keep expressing your thoughts. Do not expect to be listened to by someone. Listen to yourself and reach out for help. Keep reaching out, no matter what! The ultimate toxin for me is isolation and that seems to be for my son.
    I have helped ,many people and I have been helped by many others and that is why I am here.

  5. Thanks Amy for saying and sharing what so many of us with some form of mental illness know already. We are most of the time, the victims of assaults/crimes not the perpetrators. Thank you, thank you for backing it up with statistics/facts. Facts are harder to argue with but can still be skewed to support the stigma. I applaud you and have shared your blog on my FB wall. If I over stepped your privacy please advise and I’ll remove it.
    In support,
    Stacey

  6. Someone turned me on to the AWN and Amy’s blog just a few minutes ago and it may become one of my favorite net resources. I have learned more about autism as it affects women in ten minutes than I have in all my years as a private practitioners.
    On the subject of guns: I have been seething ever since Sandy Hook, when the NRA replaced their oft repeated “guns don’t kill people, people kill people” with guns don’t kill people, mentally ill people kill people”. They are blatantly attempting to deflect attention onto anyone they can describe as having a mental condition of any sort (one size seemingly fits all to them).
    I am so grateful that you chose to speak out on this subject. Thanx
    Chuck

    1. The difficulty is that autism is a medical condition manifesting in an neurological problem. Simple as all mental health conditions we now know are biochemical in nature. They are related to the brain. If we accept this premise, then treatment is necessary for well being. If someone has diabetes, we stress medical treatment and lifestyle changes.
      The gun issues are complex and one set of strategies is not going to change our thirst for power and mystical strength. I do believe that movies and video games influence all of us in ways we are only now know.
      Autism is not one size fits all. So, as parent of an “Aspie,” and a school psychologist, I try to learn that I need to keep learning and that is way to stay open minded.
      I treated sex offenders to gifted students and they all were different. I have counseled murderers and rapists, they were human. Our culture does not accept emotional expression and tends to want this magical thinking that happiness is the only option. If you believe you are a frog, then you will like crickets.
      The antidote is teaching tolerance that does not mean acceptance. We all need to be tolerated before we can accept and understand what is unknown.
      I have systemic arthritis which is crippling and I fear that I may see Glen Frey in wheelchair heaven. Tolerance.

Leave a Comment

Your email address will not be published. Required fields are marked *